How did my child get this disorder?
About half of the time, tuberous sclerosis is passed from a parent to a child, or inherited. If one parent has tuberous sclerosis, every child born to that parent has a 50% chance of inheriting the disease.
However, in about half the children who have tuberous sclerosis, the mother and father have no signs of it. Instead, sometimes a normal gene changes (mutates) to the abnormal form that causes tuberous sclerosis.
Currently, if a person has no signs or symptoms of tuberous sclerosis, there is no test to identify whether he or she has the tuberous sclerosis gene.
If parents who have one child with tuberous sclerosis want to have another child, they should talk with their family doctor. The family doctor can refer them to a genetic counselor or medical geneticist who can help them decide what to do.
Written by familydoctor.org editorial staff